Few things frustrate me as much as telling myself I’ll do something and then not doing it. It’s probably silly to be frustrated by myself, but I think we all do it. February is Heart Month, and, as you probably know, heart health matters quite a bit to my family. Last year, I participated in an Instagram challenge led by the Pediatric Congenital Heart Association of … [Read more...] about Is It Really All or Nothing?
If you are a follower of mine on Instagram, you probably know that, for the month of February, I posted every day to follow the themes of the Pediatric Congenital Heart Association’s #CHDAware Challenge. My purpose was to support the cause for heart month along with providing some insight into this important aspect of our lives now. On top of that, though, I actually learned a lot as … [Read more...] about What I Hope You Learned During Heart Month
In the heart kid community, our kids are usually referred to as our “heart warriors.” This word makes me immensely uncomfortable, for lots of reasons. The word warrior, to me, carries violence and anger with it. For whatever reason, I immediately picture the Huns in the movie Mulan. That image is not my Evan. Nor is it any of the amazing kids I’ve seen taking on a congenital … [Read more...] about Why I Don’t Call My Son a “Heart Warrior”